Well we officially had our first scare with Ketones. Here is how it all went down....
We have finally decided to put our feet down with Luke's poor eating habits. The kid only eats peanut butter and honey sandwiches, pizza, and grilled cheese. It has seriously become a problem. So a few nights ago we decided that Luke would not get any of his "special" dinner meals. He was given the choice of chicken nuggets or the grilled chicken I made. He said he was going to eat the chicken nuggets, but did not. of course his sugar started to drop. So we suspended his pump for an hour. Then did a -20% temp basal for a couple of hours. We thought that would bring his sugar up enough to get him through the night, and it did. At one point in the night Luke's dexcom receiver alarmed that he was high. I kind of ignored it and figured his sugar would come down because his basal was kicking in. Well maybe it went off again and I thought the same thing at some point in the night but I honestly don't remember. Well, the next morning Luke woke up soaking wet. His bed was soaked, and his clothes were soaked with urine. He came down stairs and didn't look right. He starting coughing and gagging like he was going to throw up. I checked his dexcom, he was over 350 for long time throughout the night. I checked his blood, he was 398. CRAP!! I checked for ketones. His meter read 3.8. CRAP!! We no longer use the urine test strips because obviously its very hard for a 4 year old to pee on command, plus the new blood ketone test is the new technology. If you are not familiar with the blood ketone tester (as the Doctor on-call was not, which made me furious) if it reads under 0.6 you are fine, if it reads over 1.5 you are advised to seek medical attention immediately. Yep, 3.8. So I called the pediatric endocrinologist on-call at the hospital. She was very nice, but this is the first time this has ever happened to us and I didn't have the patience for her. Maybe she was a resident which is fine, I get it, everyone has to learn sometime. I did find it a little annoying that she didn't get to the point to tell me what to do, but spent a lot of time asking about all of his basal settings and insulin to carb ratios. Then she asked about the ketones. I told her "3.8." She did not know what I was talking about. She only knew about the urine test. Now, I'm sorry but come on! I've had this type of test in my possession for a year now, how could this doctor not know what I was talking about?
While I was on the phone she was asking me if he was throwing up and if he felt sick. At that moment, he was fine. I even asked Lukas if he felt ok. He said he was good. Of course the minute I hang up with her he goes into the bathroom throwing up and crying. I have to admit, I was really scared. I was extremely emotional. All I kept thinking about was that I did this to him. If I would have acknowledged the alarm at night he would have been fine. A few minutes later the doctor called back and she gave us the option to either give him a shot or bring him to the ER. What would you do? Of course I gave him a shot! Within an hour the ketones came down to 1.8 and in another half hour they were gone. WHEW! Crisis avoided. By 10:30 am Luke was better and we were back to our normal activities!
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